An up and down kind of week

Our adventure with STX209 continues.

Since my last post on Monday, Ian has had some rough times at school and at home.  On Monday and Tuesday he came home with only 5 out of 6 smiley faces, and the teacher noted that there seemed to be more anxiety than there had been in previous weeks.

But there have also been more words, and more speech that makes sense.

On Tuesday night, I was trying to get him to turn on his humidifier at bedtime and he flatly refused.  What?  No, no, you have to do it.  Well, he did and then he burst into tears.

What a mean mommy!

I felt terrible because he rarely cries.  Who knows what the medications are doing to his hormones?  Also, he is 11 and the lovely puberty years are looming.  He finally settled down and went to sleep.

On Wednesday my usually happy morning guy was a grump.  During his dressing routine he screamed "Shut up!" at me and I scolded him and turned off his beloved PBS Kids.  He turned it around before he went to school, but came home with a very bad report.  Computer time had been taken away from him twice and he had actually said Shut Up 21 times.

Sigh.

When he got home, iPad privileges were suspended until he did some tasks to earn them back.  It's amazing how sweet he can be when he wants the iPad back!

Then, after dinner, the house was really hot.  I checked the thermostat (which is the kind you turn up and down on a dial) and it was at full blast!  The only one in the house who could have done it would have been Ian.  Weird!  Of course we asked him, but got no real answer as usual.  We told him not to touch it anymore.  But, who knows?  Maybe he thought since he had to turn on the humidifier, he should turn on the thermostat?  Not sure if it's a coincidence or not.

 I'm starting to wonder if we're going to have to baby proof the house for an 11 year old.  As a toddler, when most children his age were getting into trouble and making messes, he was an incredibly easy child.  We did baby proof then, of course, but he was just so NOT curious.  I can only recall one time when he got chocolate candy on a white chair.  (By the way, if you're having a hard time getting pregnant, just order some expensive furniture with white upholstery.  Just saying.)  We flipped the cushion and moved on.

Ian and the chair he got messy

Thursday was, thankfully, a better day.  Ian's class went on a field trip to a deli for lunch.  He behaved, ate his meal, and had fun on the bus.  He did well the whole day until the very end when he hit two of his classmates.  But, we dealt with that when he got home (apology notes) and he had a good afternoon and evening.  His daddy gave him a bath and when I was tucking him in he asked me for "Beach."  This is when we turn on his sound machine with the ocean sounds.  As I was doing that, he pointed to the wall behind me and said, "That's the beach."  It took me a second to catch on.  On that wall are two paintings my Grandfather did of beaches in Kauai.  I've never seen Ian show any interest in any of the  pictures we have around the house!  Loved that he made that connection.

My Grandfather's beach paintings

So, another week in the clinical drug trial is winding up.  Our next visit was moved up to next Tuesday, March 26.  It will be interesting to see what the next few days bring.