What a good day for Ian!

It has been 10 days since Ian took his last dose in the STX209 drug trial.

Today was a wonderful day from beginning to end, and a good reminder that in spite of the events of the last few days life does go on.

Ian has been eating different foods for dinner four nights in a row.  In our little world, this is HUGE news.  The first night was pancakes.  The second night we had a power outage and in spite of all the wackiness that caused, he ate pork ribs....a first!  Last night it was hamburger and tonight it was mac 'n cheese.  This is something that we have struggled with for years, and now, of all times, it is finally happening!

Ian struggling with his dinner two years ago

Our weather today was rainy and I was wondering what we would do all day.  We did a trip to Target, and he was good as gold.  I let him use a Target gift card to buy his DVD and he handed it to the cashier and said thank you when she returned it.  He even kept the DVD in the bag all the way to the car.  Wow!

Ian at Target a few weeks ago

He ate a good lunch, never said "shut up" or "stupid" once (the words that have been vexing us off and on for months), hung out with me in his room while I went through his clothes, joked with me while we watched Sponge Bob, and did a very good imitation of Plankton's evil laugh.  He was a joy all day long!

I hope this helps the families that will have to wean their children off  STX209.  Of course we were not on  it for very long so the impact is less for us.  But our kids are still OUR KIDS no matter what medicine they are on.  We may be pleasantly surprised by what they can do when they have to stop.

At least, that's what I'm hoping and praying for.